“All skinfolk ain’t kinfolk,” was a wry statement I overheard as a child, once, while eavesdropping on a juicy grown-folk conversation about who and what makes a family. Growing older, life experiences have led me to define and redefine kinship.
In 2004, I developed a spinal cord injury and had a baby. Forever changed, my frustration and depression grew as I began experiencing society’s inability to understand the impact disability has on life. I went from having the ability to easily walk anywhere to chronic pain and the inability to climb stairs, for instance. But a few years post-injury, seeking and finding the disability advocacy community was a game changer. Advocacy and activism led me to form a kinship with others in the community, especially with my sister-friend, Bethany (Queen B!).
I met Bethany through my kid at a 2009 ADAPT disability protest after-party in Atlanta. He was four years old at the time and excited, pulling back the handlebars of this woman’s wheelchair to dance with her and her (now) wife. I rushed over to intervene. Upon introductions, I instantly recognized this beautiful woman’s name. (I’d become interested in grassroots speaking about disability and reproductive health. An advocacy mentor suggested I read Bethany’s work in disability and sexual health scholarship and “pleasure activism.”) Like recognizing like, we bonded from the jump.
Eleven years have flown by since that day. Bethany and other folks with disabilities introduced me to the concept of reclaiming the word “crip,” from the rude term “cripple.” And we’ve created what we call a “crip sisterhood.” As a community phrase, it’s used to express cross-disability solidarity in resisting oppression from ableism (discrimination against disability). Although the word “crip” is often negatively associated with a notorious street gang, disabled people can use it to display proud resistance.
This relationship helped me discover joy in being proudly disabled and living life out loud.